The website for the National Multiple Sclerosis Society is nationalmssociety.org. They have wonderful information and resources available. They also show the different events that are happening around so that you would be able to be involved if that's something you would be interested in. It's a great place to check out things that are happening with developments, events, research, etc. Please check it out!! learn more about tysabri
Another great site to go to for more information on Multiple Sclerosis as well as Rebif (the three times a week under the skin shot that I happened to be on for about a year and an half or so...) is www.mslifelines.com I know both Chuck and myself have been there a whole lot esp when I was thinking about going on Rebif and while I was on Rebif. Hopefully that's something that can help too.
Tysabri (current medication I am on that is working wonderfully for me) also has a website available. It is www.tysabri.com. If you have been on Avonex, Rebif, or Copaxon and they don't seem to be working Tysabri may be something you want to look into and talk to you your doctor about. As I said it's working great for me but unfortunately MS affects everyone differently so Tysabri may not be what's best for you. But please check it would and see for yourself what you think.
While my husband, Chuck and I are sitting up at 2:30am working on this site (truth be known we are rather excited about the possibilities available here and want to get them all going yesterday but...) Anyway, as we're sitting here we googled other multiple sclerosis sites just to get ideas and see what else is out there and we found this one....We're not sure who this gentleman is but he offers some advise on books he recommends and some he doesn't and that sort of thing. Anyway there's the site link Hope it can help some too...http://www.jamesshuggins.com/h/bas1/home.htm.
There are many different types of treatments on the market so you should get with your doctor to determine which one is the best for YOU, a friend or co-worker may also be affected, the treatment that is working for them may not be right for you!
The one thing that I am Very sure of is that you need to be honest with yourself so that you can be honest with your doctor. TELL THEM OF EVEN THE SMALLEST CHANGES OR CONCERNS.
There is one person that I know of that has no support from his wife (he's recently diagnosed ) So far I haven't be able to talk with them,It is imperitive that a home support person or system be in place and effective. If there is not one and you need questions answered or just need to talk, call me. My name again is Chuck and you can reach me at 419-302-3829. You can reach Amy or Chuck at 567-712-7385. 24 hours a day,Don't hesitate to call. This is an MS land line and only for those of you who want to discuss anything concernng you..Any time of the day or night is ok. I am not a doctor in any way shape or form!!! Just a guy that wants to help in any way he can.
Another great site to go to for more information on Multiple Sclerosis as well as Rebif (the three times a week under the skin shot that I happened to be on for about a year and an half or so...) is www.mslifelines.com I know both Chuck and myself have been there a whole lot esp when I was thinking about going on Rebif and while I was on Rebif. Hopefully that's something that can help too.
Tysabri (current medication I am on that is working wonderfully for me) also has a website available. It is www.tysabri.com. If you have been on Avonex, Rebif, or Copaxon and they don't seem to be working Tysabri may be something you want to look into and talk to you your doctor about. As I said it's working great for me but unfortunately MS affects everyone differently so Tysabri may not be what's best for you. But please check it would and see for yourself what you think.
While my husband, Chuck and I are sitting up at 2:30am working on this site (truth be known we are rather excited about the possibilities available here and want to get them all going yesterday but...) Anyway, as we're sitting here we googled other multiple sclerosis sites just to get ideas and see what else is out there and we found this one....We're not sure who this gentleman is but he offers some advise on books he recommends and some he doesn't and that sort of thing. Anyway there's the site link Hope it can help some too...http://www.jamesshuggins.com/h/bas1/home.htm.
There are many different types of treatments on the market so you should get with your doctor to determine which one is the best for YOU, a friend or co-worker may also be affected, the treatment that is working for them may not be right for you!
The one thing that I am Very sure of is that you need to be honest with yourself so that you can be honest with your doctor. TELL THEM OF EVEN THE SMALLEST CHANGES OR CONCERNS.
There is one person that I know of that has no support from his wife (he's recently diagnosed ) So far I haven't be able to talk with them,It is imperitive that a home support person or system be in place and effective. If there is not one and you need questions answered or just need to talk, call me. My name again is Chuck and you can reach me at 419-302-3829. You can reach Amy or Chuck at 567-712-7385. 24 hours a day,Don't hesitate to call. This is an MS land line and only for those of you who want to discuss anything concernng you..Any time of the day or night is ok. I am not a doctor in any way shape or form!!! Just a guy that wants to help in any way he can.
This next video actually describes what it's like to have multiple sclerosis better than any description I have ever came up with or thought of or anything...This is how I myself feel honestly almost daily!